Not the news I wanted...

Lala will probably be going home by the end of the summer.

It's taken a few days to fully process all the information - I suppose there is a minuscule chance that she won't go home, but somehow it feels wrong to hope for that. Instead I guess I'll just keep going each day... and really, I know there are a lot of people who give anything for the short months that I've had. I got a mother's day card. I bought an Easter dress. I've already bought a 4th of July dress. And maybe I'll get a first birthday squeezed in.

In the meantime, Lala was referred to a pulmunologist. We drove all the way to the very large city not-so-near-by and got nada. She was perfectly healthy while there - no "crackling", no darth-vader like breathing. We have to go back in a couple of months for another evaluation after having a swallow study. It's possible that she's been aspirating food and that's causing repiratory infections. Of course, given the past history, she'll do fantastic and we're back at square one.

This morning we went to day care as usual. An hour and half later, Lala had a fever of 102 and I had to leave work to pick her up. Her regular doctor said, "this may just be a regular day care virus for once." No ear infection, no lung "crackle", no snot. At least I got about a 5 day weekend.